Mo Samuels: Journey To Motivation

Recently I came across the following YouTube video which told the story of a very young man who had lymphoedema in the UK and completely transformed his life despite facing hospitalizations and infections we all know come with living with LE. As founder of The Lymphedema Running & Fitness Club where we have over 2K […]

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It’s All About You: 3rd Annual Patient Lymphedema Symposium hosted by BIDMC/Harvard Medical School

We are going back!  I am so happy and thrilled to announce that we are headed back to Boston.  You are invited to hear my patient story at the 3rd Annual Patient Lymphedema Symposium hosted by BIDMC/Harvard Medical School on Saturday, September 28, 2019 along with BSN Medical /JOBST USA. If you are part of […]

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Discovering Ways to Natural Pain Management

If you don’t think pain can steal away your life, try living with it every single day. For those of us with an incurable, chronic illness sometimes it seems like you are trapped in a body that does not cooperate despite your best efforts. Have you ever felt guilty telling someone “No, I can’t help […]

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Fourth of July Celebrations

For the first time ever, we will have simultaneous virtual 4th of July celebrations in each Lymphie Strong group. Participating in online holiday celebrations is a great way to have fun and take a break from the norm. Many of us have developed friendships over time, and sharing allows us to join in on festivities […]

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Lymphie Strong Shirt Summer 2019

Inspired by one of my best friends from college and back by popular demand, the Lymphie Strong shirt for Summer 2019 is live!! There are six different shirts to choose from, so click the link before you ask questions. Order Deadline: July 6, 2019. Link 🌐 https://www.customink.com/fundraising/lymphie-strong-awareness-storm THEY WHISPERED TO US YOU ARE NOT STRONG […]

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Deep Water Running

Last week Lymphie Strong was proud to present “Deep Water Running by Jennifer Conroyd, CEO of Fluid Running” on Thursday June 20, 2019 at 12:00 PM CST. It is available to view now in the group. Jennifer Conroyd is the founder of Fluid Running, a nationally recognized deep water exercise program. She is an avid […]

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Lymphedema 101 Series

Official Lymphie Strong Inspiration Group for Lymphedema Announcement 🗺🌐 You may have noticed that Pernille 👩🏻‍💻🕵🏻‍♀️ is doing a series of posts all labeled Lymphedema 101. Each post is part of a series. They used to call the internet an Information Superhighway. Maybe some people still do. Well, we want you to follow the “Lymphedema […]

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Lymphedema Children’s Camp – When children with a rare disease are at the centre

By Guest Blogger Pernille Henriksen The story of the Lymphedema Children’s camp began in 2008, with a first Children’s Camp weekend in Montpellier, France. It was originally a collaboration between the vascular and lymphatic medicine department in Saint Eloi University hospital, Montpellier University, France and the national patient association “Association Mieux Vivre le Lymphoedeme” and […]

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Stay The Boss Of Your Body

Today is Father’s Day 2019 in the United States, so it is the perfect time to heighten men’s health and the fact that men get LE too. Many of you know that my father and grandfather both had primary lymphedema.  Since Dad struggled for over 20 years to get a diagnosis, I want to share the […]

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