Here you will find a list of lymphedema resources that may help you on your lymphatic journey.
Patient Organizations & Resources
Lymphatic Education & Research Network
The Lymphatic Education & Research Network (LE&RN) is an internationally recognized non-profit organization founded in 1998 to fight lymphatic diseases and lymphedema through education, research and advocacy. With chapters throughout the world, LE&RN seeks to accelerate the prevention, treatment and cure of these diseases while bringing patients and medical professionals together to address the unmet needs surrounding lymphatic diseases, which include lymphedema and lipedema.
National Lymphedema Network
The National Lymphedema Network’s mission is to empower our community of lymphedema practitioners and patients by providing educational opportunities, networking opportunities, and interventional resources. We aim to inspire clinicians to provide world-class care for people with lymphedema by promoting best practice guidelines and standards of care.
Lymphedema Treatment Act
The Lymphedema Advocacy Group is an all-volunteer organization of patients, caregivers, healthcare professionals and industry partners. Our mission is to advance lymphedema care in the United States by advocating for improved insurance coverage for the diagnosis and treatment of the disease. For this purpose we work to increase awareness of and education about lymphedema amongst lawmakers, insurance providers and other relevant entities. We support attempts to improve coverage at both the state and federal levels and encourage all members of the lymphedema community to become active participants in this process. Our primary objective at this time is passage of the Lymphedema Treatment Act.
Lighthouse Lymphedema Network
The Lighthouse Lymphedema Network is a non-profit IRS Section 501(C)(3) organization of individuals who are lymphedema patients, or who have an interest in lymphedema. Our goal is to educate, promote awareness, and provide support for lymphedema patients, the medical community, family and caregivers, insurance companies, the general public, and lymphedema support groups.
10 Things LE
Practical information for individuals with lymphedema, their families, and healthcare practitioners
Lymphedema Financial Assistance Programs
Ninjas Fighting Lymphedema
Ninjas Fighting Lymphedema organization is a 501(c)3 organization who can assist in providing necessary treatment options to lymphedema patients who are in financial need.
Marilyn Westbrook Garment Fund
Your Lymphedema therapist may submit an application on your behalf if they are an Affiliate member of the National Lymphedema Network.
Brylan’s Feat Foundation
Financial assistance for lymphedema treatment to children in need. Brylan’s Feat Foundation is a non-profit organization that maintains exemption under IRS section 501(c)3.
American Lymphedema Framework Project
Mission: Improve the management of lymphedema and related disorders in the United States while contributing to global international advancement. Visit link https://www.alfp.org/resources/map/ or download app Look4LE.
You can now search for specialists in the ALFP Therapist Directory using your smartphone with the Look4LE, available for iPhone/iPad and Android.
Lymphology Association of North America (LANA)
The Lymphology Association of North America, LANA, is a non-profit corporation specializing in the certification of healthcare professionals who diagnose and/or treat lymphedema and related disorders. LANA was created following the 1998 American Cancer Society Lymphedema Workshop recommendation to establish certification guidelines to assure that specific treatments and facilities meet state-of-the-art criteria. The multidisciplinary LANA Board of Directors, including physicians, nurses, and therapists, identified the need for and subsequently created a national certification examination.
Lymphedema Blog – Find A Therapist
The following links to lymphedema training schools and resources list therapists in the United States and the rest of the world.
Lymphatic Surgery Resources
Cleveland Clinic Lymphedema Surgery & Lymphatic Reconstruction
The following listing of links has been provided as a patient source of information.