Lymphedema Resources

Note: The Lymphie Strong list of resources is currently a work in progress and will be continuously updated. 

Lymphie Strong Compression Garment Sponsors

Juzo® USA

Giving People the Freedom to Move for More Than 100 Years

Juzo is more than 100 years old, but we like to think of ourselves as being 100 years young. We’ve accomplished quite a bit during the past 10 decades, including many industry “firsts” like switching from woven to knitted fabrics, adding silver fibers to our garments and incorporating computer technology into our production processes.

http://www.juzousa.com/


JOBST® USA

The JOBST Tradition

Today, we continue the vision that Conrad Jobst began, helping relieve pain caused by venous diseases and lymphedema, and improving the quality of life through the wearing of JOBST gradient compression garments.

http://www.jobst-usa.com/


Lymphie Strong Product Ambassadorships

Xpandasox®

It is through each phone call, message and conference attended that we have learned the functionality of Xpandasox® for people with lymphedema, lipedema, Dercums Disease and any condition in which people suffer from edema in their legs.

https://www.xpandasox.com

Fluid Running®

For those affected by Lymphedema, exercise can be critically important yet challenging. Exercise must be done progressively and, oftentimes, without impact. Fluid Running combines the benefits of running on land without any impact and can be modified to accommodate any fitness level. We developed coach-led, music-backed workouts that will allow anyone to get started at any level.

https://www.fluidrunning.com/fluid-running-for-lymphedema/


Patient Organizations & Resources

LE&RN

Lymphatic Education & Research Network

The Lymphatic Education & Research Network (LE&RN) is an internationally recognized non-profit organization founded in 1998 to fight lymphatic diseases and lymphedema through education, research and advocacy. With chapters throughout the world, LE&RN seeks to accelerate the prevention, treatment and cure of these diseases while bringing patients and medical professionals together to address the unmet needs surrounding lymphatic diseases, which include lymphedema and lipedema.

https://lymphaticnetwork.org/

TX Chapter

https://lymphaticnetwork.org/chapters/texas

LE&RN Texas Chapter Facebook Page

Other Chapters

https://lymphaticnetwork.org/chapter-page

LE&RN Expo

https://lymphaticnetwork.org/expo

Ask The Experts

https://lymphaticnetwork.org/living-with-lymphedema/ask-the-experts/

World Lymphedema Day®

https://lymphaticnetwork.org/wld

LYMPHEDEMA What You Need to Know

https://lymphaticnetwork.org/documents/LERN_MGH_LE_Booklet.pdf

Run/Walk To Fight Lymphedema & Lymphatic Diseases

https://lymphaticnetwork.org/lymph-walk


Lymphedema Treatment Act

The Lymphedema Advocacy Group is an all-volunteer organization of patients, caregivers, healthcare professionals and industry partners. Our mission is to advance lymphedema care in the United States by advocating for improved insurance coverage for the diagnosis and treatment of the disease. For this purpose we work to increase awareness of and education about lymphedema amongst lawmakers, insurance providers and other relevant entities. We support attempts to improve coverage at both the state and federal levels and encourage all members of the lymphedema community to become active participants in this process. Our primary objective at this time is passage of the Lymphedema Treatment Act.

www.lymphedematreatmentact.org


Lighthouse Lymphedema Network

The Lighthouse Lymphedema Network is a non-profit IRS Section 501(C)(3) organization of individuals who are lymphedema patients, or who have an interest in lymphedema. Our goal is to educate, promote awareness, and provide support for lymphedema patients, the medical community, family and caregivers, insurance companies, the general public, and lymphedema support groups.

www.lighthouselymphedema.org


National Lymphedema Network

The mission of the National Lymphedema Network is to create awareness of lymphedema through education and to promote and support the availability of quality clinical interventions for all individuals at risk for or affected by lymphedema.

https://lymphnet.org/


10 Things LE

Practical information for individuals with lymphedema, their families, and healthcare practitioners

http://10thingsle.info/resources/


Compression Garment Assistance Programs

Ninjas Fighting Lymphedema

Ninjas Fighting Lymphedema organization is a 501(c)3 organization who can assist in providing necessary treatment options to lymphedema patients who are in financial need.

https://www.winourfight.org/


Marilyn Westbrook Garment Fund

www.lymphnet.org/patients/garment-fund


Brylan’s Feat Foundation

Financial assistance for lymphedema treatment to children in need. Brylan’s Feat Foundation is a non-profit organization that maintains exemption under IRS section 501(c)3.

https://www.brylansfeat.org/


 

Lymphedema Providers

American Lymphedema Framework Project

Visit link https://www.alfp.org/resources/map/ or download app Look4LE.

You can now search for specialists in the ALFP Therapist Directory using your smartphone with the Look4LE, available for iPhone/iPad and Android.

Lymphology Association of North America (LANA)

www.clt-lana.org


Lipedema Resources

Lipedema Treatment Guide

Lipedema Treatment Guide Website

Natural Health Resources

http://naturalhealthresources.com/