Lymphedema Advocacy Mentoring

This is the second blog post in a series dedicated to why I became an advocate. The first step was identifying Why I’m In This Fight.  I think my speech in California pretty much sums up my feelings about why it is so critically important to get involved at any level.  Anything can help. So […]

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Lymphie Strong Teal Ribbon Food Challenge

Calling all Lymphie Foodies! 🥑🥦🥬🥒🌶🍆🍅🍍🍒 Some of you expressed some interest, so here we go. This will not be your average county fair blue ribbon pie 🥧 challenge. It will be a food challenge for Lymphies by Lymphies. 💚 Registration opens 15APR. Winner determined via random drawing. Will you be the first Teal Ribbon Food […]

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Patient Feedback Survey

In order to help move our patient community forward, we need to make our voices heard in many ways.  One way is to provide feedback on how we are impacted daily in our everyday lives. The following 17 question anonymous survey requests no personal identifiable information, assumes condition is meant in relation to lymphedema or lymphatic […]

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Lymphie Strong Launches Outreach Process

This blog post is about giving and is near and dear to my heart.  Most of you know that I volunteer for both LE&RN and the LTA.  I recognize the importance of volunteerism.  Anyone who knows me knows I fundamentally believe in giving and grassroots patient initiatives to help our community. Right now I have […]

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Quick Tip – Lymphedema Pump Storage

The following LE Quick Tip came from Cat M., a long term member of our Official Lymphie Strong Inspiration Group. Need some ideas on where to store your lymphedema pump? Here’s a fun and cute ottoman from a big box retail store most of us are familiar with. Thanks, Cat! Wanted to share this find. […]

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Lymphatic Health History

This afternoon I witnessed something that I never thought I would live to see in my lifetime.  I presented with lymphedema in 1994 before the internet, before smartphones, before technology really had the power to bring us closer together in a mainstream way the way it does today.  I grew up in the late 70’s […]

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Official Lymphie Strong Inspiration Group Celebrates 3K Membership Milestone

Congratulations and thank you to all who have been faithful members of the Official Lymphie Strong Inspiration Group. Wow what a journey!! We started out with 74 engaging people in September of 2015. I used to personally vet each person that joined one by one and for 3 years ran it by myself. A big […]

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Why I’m In This Fight

We wound down Lymphedema Awareness Month, but we all know it does not stop there. As patients we advocate, educate, raise awareness, fundraise, and take action year round. In fact, a member of my group asked me how to get involved. I thought I would write this first in a serous of blog posts on […]

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PEACE LOVE CURE LYMPHEDEMA

PEACE LOVE CURE LYMPHEDEMA lymphiestrong.com Thank you for being part of the #LYMPHIESTRONG Community and proudly wearing or displaying your shirt during awareness month and beyond. So many of you have said that it opened doors to educate others already. We can change this world one person at a time. We are stronger together, and […]

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Lipedema Treatment Guide en Español

Exciting news for all of the Spanish speaking community impacted by lipedema. Kathleen Lisson, author of Swollen, Bloated, and Puffy and Lipedema Treatment Guide, just released the Spanish version of the latter book entitled Lipedema Guía Terapéutica last month.  She reached out to me and together we decided to do a giveaway that ended on […]

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