Have Swelling? You Are Not Alone

Have Swelling? You Are Not Alone.

We Care Because We Live With It Too

Launched in 2015 by a father and daughter from Texas initially hoping to spread awareness about multigenerational hereditary lymphedema with a blog and a small Facebook group, Lymphie Strong has grown into a global patient support and advocacy community with thousands of members who live with lymphedema and lymphatic disorders of all types.

Lymphie Strong is an online resource for people with lymphedema by people with lymphedema who know from firsthand experience how challenging living with chronic swelling can be and how it impacts your life in both big and small ways.

Find Treatment Information & Support

Support Communities

people forming round by shoes

Whether you want to learn about lymphedema self-management treatment options, get anecdotal advice from real people on coping with flare ups and symptoms, learn more about topics like surgery, or have questions on diet and exercise, our members are here to help get you started.

Move That Lymph Challenge Series

Want to workout with others who know what it is like to deal with your symptoms?

Take your lymphedema fitness training to the next level and join an upcoming virtual Move That Lymph challenge.

Empowerment Series Events Calendar

composition of notepads and calendar of new month

The 2021 Empowerment Series Events Calendar will highlight all events for our support groups with the aim to fulfill our mission of helping to close the gap in finding information and to help end isolation. This includes group speakers and conferences available to the patient community.

Resources

Here you will find a starter list of lymphedema resources that may help you on your lymphatic journey.

This includes the websites of our compression garment sponsors, product ambassadorships, patient organizations and resources, financial assistance programs, public lymphedema provider directories, and some lipedema resources.


March is Lymphedema Awareness Month!

A Support Group Can Help Provide Light and Hope As You Look for Answers

A grateful CLT in San Diego, CA

I almost left being a lymphedema therapist entirely until I stumbled upon your groups. Seeing that there was somewhere safer to send my patients to have community and support and not have to hold all of that myself was a turning point in me committing to finding a way to stay in this field. I am forever indebted to you all

-Andrea

California

Without this group I would have absolutely been lost when my baby, now toddler, was diagnosed with LE.
Pre-COVID we had a fantastic CLT, but with local restrictions we’ve had to manage on our own for the past year. We’ve been able to build our lymphie toolbox with different supplies and techniques from this group alone.
I will forever be grateful to those who share their stories and hope the group is around when my toddler is old enough to join. Having a community to support him as he grows up is priceless.

-Mackenzie

Seattle, WA

This group has been invaluable to me for information. Through information shared in this group I found a general therapist who has helped me tremendously. I also got great tips on how to navigate insurance issues related to my care and new products I had not heard of. I was able to find a certified CLT as well.
This group has helped me to connect with a few local fellow Lymphies. Having Dr Chen share his information helped me to make surgical decisions that further improved my Lymphedema. I feel as though I’ve gotten to know several of the members here and in low times of stress and illness regarding my condition, knowing that I have somewhere to vent, share commiserate with other people who understand and often have excellent advise has made this journey so much smoother and less uncertain. My greatest improvements over the last 2 years have been 100% enhanced by the information I find on the Lymphie Strong pages. Thanks to all who share, advocate and comfort. Forever grateful to Veronica for all of the time and care put into building, maintaining and supporting these groups.

-chenoA

Virginia

I love this group and I embrace my unique ability to manage this diagnosis. I had it for years but only until 2 years ago did I know the name. I want to model and show people that I’m sexy, fly, awesome and created differently to win. The Bible records that I am fearfully and wonderfully made! This group saved my life! Jeremiah 33:3, 2Corinthians 5;7

I am a Winner!

-NANYAMKA

Dallas, Texas

I can’t say enough about all of the benefits I’ve received via the various Lymphie strong Facebook groups. The groups are a wealth of information for users. I’ve learned about (and purchased) products and equipment that others are using to manage their lymphedema. I’ve been encouraged and empowered by other’s testimonies. The various physical activity challenges have inspired me to be more physically active, I’ve learned about and attended events that offered a wealth of information. I love the Lymphie Strong Facebook groups.

-yolanda

Michigan

This past November after completing over a year of treatment for my 3rd breast cancer diagnosis, I was feeling like I turned a corner. Whew, I made it through more surgery, chemo, and herceptin infusions! I was finally breathing a sigh of relief. Well, one month after completing the treatment, I was diagnosed with lymphedema. I was shattered.I was told by the CLT that there’s “no cure, but you’ll learn to manage it”. I was dealing with wrapping my arm and hand for 4 weeks solid. Totally new to me, and trying to prepare for the holidays was awful. I’m not going to lie, I was extremely depressed, and my thoughts were dark.Then thankfully I found this group. You all gave me hope that I could indeed live a “normal” life. One particular member reached out to me early on. She has been instrumental in my continued healthy – and hopeful – mindset towards LE. I’m forever grateful to her, and everyone else in the group. I feel like it literally saved my life. Love from northern Michigan

-Barbara

Indiana

When I was diagnosed I was overwhelmed and confused. No doctors could help me. No specialists could be found. This is truly an “orphan disease” with few experts. Then I found Lymphie Strong and I wasn’t so alone. Through info in the group I learned more of the tools that truly helped me, I found expert physical therapists in my area, and I have learned something new every day.

-Laura

Michigan

Hands down the best FB support group there is. I’m so glad I found you. Keeping it positive, nonjudgmental, informative, and safe is what keeps me tuned in. Love ♥️ you.

-luann

New Jersey

Veronica, happy anniversary! THANK YOU for creating such an important tool for us lymphies. The knowledge and compassion found here is unparalleled. Your site means so much to me. Thank you!

-barbara

Australia

Happy 5th Anniversary!

Thank you so much for creating this community. Five years ago I had never heard of lymphoedema, but when I got swelling in my leg three years ago and joined a year later, it was someone’s post here that ultimately got me my diagnosis of MTS. I would possibly never have gotten the help I needed, without the knowledge I learnt through the group and I’ll forever be grateful.

-britt
Member Testimonials

About

Lymphie Strong is a global patient support and advocacy group for people living with lymphedema founded and owned by Veronica P. Seneriz.

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We Are Stronger Together

Lymphie Strong would like to thank our industry partners and sponsors who help bring our patient initiatives and programs to fruition.

You Are Not Alone

Lymphie Strong partners with products and programs designed for people who live with chronic edema and swelling. We understand because we live with it too and have for over 3 generations.

Find out more information on the new event from Ninjas Fighting Lymphedema Foundation.