We would like to thank all of our group speakers who have taken time away from their busy schedules to help educate and promote lymphatic health in various aspects. Your input and collaboration is invaluable.
Lymphie Strong Group Speakers
Exclusive JOBST USA FB Live for Lymphie Strong Closed Group
Tuesday, August 14, 2018 at 6 PM
For the first time ever, JOBST® USA has partnered with the Lymphie Strong community and will host an FB Live Presentation on August 14th at 6 pm CST exclusively within this closed group. I am honored and pleased to make this announcement, because it has been in the planning stages for months! Can’t thank JOBST USA enough for their forward thinking on this project.
Kathy Phillips, RN and Medical Advisor for JOBST® USA will present – Compression & The Science Behind Why We Wear It – with me beside her here in Houston, TX. She has 20 years of experience with JOBST and travels to San Antonio, Dallas, & Houston. This is an amazing learning and educational opportunity, especially for those of you that have limited access to knowledgeable people on JOBST products in your area.
Looking forward to a successful event❕
#LTAFriday by Becky Sharp
Friday, August 31, 2018 at 8 AM – 9 AM
It’s #LTAFriday!!! Please enjoy this FB Live with Becky @ 9 AM EST on 8/31/2018.
Becky asked me to join her in DC in May 2017, and we had a great trip. I thought she’d be the perfect person to kick off our LTA Series. We will try to have speakers from different states. All Group Guidelines & Rules apply.
Rebecca “Becky” Sharp (Jefferson City, TN) is a breast cancer survivor of 7 years. Since she was only having a lumpectomy and sentinel node biopsy the word lymphedema was never mentioned. When Becky asked about lymphedema she was told she would not get it. Two weeks after MammoSite radiation treatment, her arm, breast, and trunk became swollen. It took two months of bandaging with limited results and a lot of internet searching to find out she needed to have CDT.
Becky found a CLT-LANA who helped her, but by then her lymphedema was Stage 2. With several other patients Becky helped form a support group in Knoxville, TN – the Lymphedema Awareness Network of East Tennessee (LANET). They meet monthly and are working tirelessly to provide education, advocacy, and support.
Becky has attended many conferences pertaining to lymphedema including the National Lymphedema Network (LSAP) and Lighthouse Lymphedema Network. She wants to see the Lymphedema Treatment Act passed and joined the LAG board to help in those efforts as much as possible. (Board Member, Lymphedema Advocacy Group)
#LERNMonday – Sarah Brunskill CA Chapter Update
Monday, September 3, 2018 at 6 PM – 6:30 PM
#LERNMonday – Sarah Brunskill CA Chapter Update 4 PM Pacific Time FB Live
“Sarah is a mom, advocate, and caregiver for her son Grayson who was born in 2016 with primary lymphedema in his hands, legs, and feet. “ Sarah’s family joined the group shortly after Grayson was born. She will share their journey and what’s new with the LE&RN California Chapter.
Q&A on Keto for Lymphedema / Lymphoedema
Thursday, September 6, 2018 at 7 PM – 8 PM
Kimmi of “Keto with Kimmi” will answer questions on the ketogenic diet specifically as it applies to Lymphedema.
“Kimmi Katte is 53, and works as a Clinical Nutritionist in Australia, teaching her clients how to use food to improve their health. While her profession requires that she is very familiar with many different dietary protocols, she chooses the ketogenic diet as her preferred way to eat. […] Kimmi has strategically used the ketogenic diet to reduce or resolve many of her own health conditions including lymphedema & lipedema [among other conditions].”
For more information visit – www.nutritionalsynergy.com.au
The standard group disclaimer and atmosphere rules apply as listed in the Group Guidelines & Rules. Please submit your questions in advance in the essence of time management.
#LTAFriday Speaker Bill McCann
Friday, September 21, 2018 at 10 AM – 10:30 AM
Bill McCann will give a brief update on the Lymphedema Treatment Act and how you can help.
Bill McCann (Kansas City, MO) was diagnosed with Synovial Sarcoma at 23 years old. A rare and aggressive soft tissue cancer, which spread to his lymph nodes. Bill had several treatments and surgeries, including a cluster of lymph nodes being removed. 17 years later, he woke up in an Intensive Care Unit and was told he had Sepsis/Septic Shock due to Lymphedema in his leg.
After a few years of adjusting to this new reality, Bill reached out to the Lymphedema Advocacy Group for education and hope. He thanks his local certified CDT therapists for teaching him how to manage the condition. He has experienced and heard the frustrating stories related to insurance coverage for essential medical supplies. Bill turned that frustration into a positive by becoming a volunteer advocate.
He praises Elaine Eigeman’s determination and energy as extra motivation. Bill leads the Kansas and Missouri advocacy teams.
#LTAFriday w/ Sarah Bramblette
Friday, October 5, 2018 at 11:30 AM – 12 PM
Sarah, Board Secretary, Lymphedema Advocacy Group, will deliver this week’s update on the status of the LTA progress and how you can help.
Sarah Bramblette (Portsmouth, Ohio) is a patient with primary Lipedema and secondary bilateral lower extremity Lymphedema. She was diagnosed with Lymphedema in 2001, and Lipedema in 2004. Her initial diagnosis was delayed by years because doctors blamed weight for the size of her legs.
Living with lymphedema for more than a decade, she learned to navigate the insurance approval process and advocate for herself in order to secure insurance coverage for her lymphedema garments and compression treatment from four different insurers. Her experience lead her to pursue a career in health administration, she earned her BS in Health Services Administration in 2009, and will complete her MS in Health Law in June 2015.
She combines her personal story and knowledge of policy and law to power her advocacy efforts. Sarah was a member of the National Lymphedema Network LSAP class of 2014, and participated in the 2014 Lymphedema Lobby Days in Washington, DC.
In October 2014, she appeared on The Doctors television show where she talked about her advocacy efforts for the Lymphedema Treatment Act and why the need for coverage of compression garments is so vital for patients.
Thonic Innovation CEO
Wednesday, October 10, 2018 at 4 PM – 4:30 PM
On Wednesday 10th at 4pm GMT+2/ 11 AM Eastern, we will be hosting a live session in Copenhagen, Denmark, with the CEO Pierre Gonon, founder of Thonic Innovation. We are delighted that the Official Lymphie Strong Group members will be among some of the first lymphoedema patients in the US to be presented with Fast’n go, a new and innovative self-bandaging system.
You can submit questions during or after the session, and they will be collated and answered by Pierre in writing. The presentation will be in English, and a short transcript in English will be made available subsequently.
We hope many of you will join us – and if you can’t make it at this time then please watch afterwards!
Sharon Thorp, Xpandasox CEO
Wednesday, October 17, 2018 at 7 PM – 8 PM
Sharon Thorp, CEO Xpandasox, will talk about her journey in finding the LE community and her mission to help.
An answer to a prayer, an encounter on an airplane changed the path of Xpandasox® CEO & founder Sharon Thorp’s career, and she founded Passione Legwear, meaning “passion” in Italian. Inspired by the elegance and romance of Italy and its impeccable style, Sharon married luxury with everyday wearability and found success at QVC, building a business that is contrary to the worldly view of business. Matthew 6:24
From there, after listening to feedback from customers that socks were too tight around their calves, and following much prayer for direction, an idea for an expandable sock came into Sharon’s mind. The same day, the first prototype was cut and sewn, and Xpandasox® was born. After 2+ years of sourcing and applying for a patent, the problem solving debut collection of Xpandasox® was featured at Full Figure Fashion week in NYC, in June 2015. Stretching 24+ inches, Xpandasox® featuring the sewn-in Xpandapanel™ stretches and contracts to stay up without binding, allowing for great style and comfort. Though the idea was initially conceived for people with wider or athletic calves, it was soon realized that Xpandasox® are also ideal for anyone with leg swelling due to frequent travel, pregnancy, health conditions, etc. They also stretch to accommodate casts and braces, and are ideal for use with sock aids.
Giving back is at the heart of our company, so we are excited to not only offer women and men Xpandasox® that stretch 24+ inches to accommodate wide calves and solve problems such as leg swelling, but also to donate as many socks as possible to those in need. For every pair of Xpandasox® purchased, we will be depositing 1 pair into our “Sock Bank.” Socks are the most asked for item in homeless shelters in the USA, and we have partnered with organizations that will withdraw socks from our bank to give to those in need. We have been challenged by an organization to donate 200,000 pairs of socks by March 2016. Please help us to reach this goal, so that we can serve others. We will be donating black socks that are antimicrobial, to promote healthier feet, and cushioned on the bottom for added comfort that are more resilient to wear and tear. These will be distributed throughout the United States.
JOBST® USA Nighttime Solutions
Tuesday, November 27, 2018 at 6 PM – 7 PM
JOBST® USA has partnered with the Lymphie Strong community once again and will host an FB Live Presentation on Tuesday November 27th at 6 pm CST exclusively here within the Official Lymphie Strong Inspiration Group.
Topic: JOBST® Relax Flat Knit and Other Nighttime Garment Solutions
Speaker: Kathy Phillips, RN, Medical Advisor
Jobst Lymphatic Solutions
Catherine Seo, PhD & Co-Director of The Lipedema Project
Tuesday, December 4, 2018 at 8 PM
Catherine Seo, PhD is the Co-Director of the Lipedema Project and Founder and Director of Lipedema Simplified, LLC. She is also the producer and director of the documentary The Disease They Call FAT. When confronted with almost certain immobility and complications from misdiagnosed lipedema, Dr. Seo traveled the world interviewing patients, doctors, surgeons, and experts and developed the film from her findings. She holds a doctorate in Media Psychology. Her research has been focused on empowering women who experience distortions of body image represented in the media by applying self-compassion and other meditation techniques.
She is currently working on a book about lipedema and in partnership with Dr. Smith is developing a series of online courses for patients and healthcare professionals. She is based in the Greater Boston Area, and works internationally.
“I am PASSIONATE about new media & technology. I believe it’s the most impact that we can have during this time on the planet.”
The Lipedema Treatment Guide Q&A
Tuesday, December 11, 2018 at 6 PM
Author Kathleen Lisson will answer Q&A on her most recent book – The Lipedema Treatment Guide.
About This Site
Hello my name is Kathleen Lisson and I am Board Certified in Therapeutic Massage and Bodywork and is a Certified Lymphedema Therapist. I own Solace Massage and Mindfulness, I have taught classes at IPSB Massage College in San Diego and I am the author of ‘Swollen, Bloated and Puffy, a Manual Lymphatic Drainage Therapist’s Guide to Reducing Swelling in the Face and Body.’
As a Certified Lymphedema Therapist, I have shared information on lipedema, an astoundingly underdiagnosed fat disorder, with individuals and community groups across San Diego and used social media to share tips on calming the pain and inflammation associated with lipedema.
See more info at https://lipedematreatmentguide.com/
Fluid Factor – Lymphedema/Lipedema Care
Sunday, January 6, 2019 at 2 PM – 3 PM
Fluid Factor – Lymphedema/Lipedema Care, Oncology Massage & Complete Decongestive Therapy
“Massage is more than a career for me. When my sister was diagnosed with brain cancer I cared for her. Between oncology massage, MLD, and a simple healthy lifestyle, her time with us was extended long past doctors prognosis and was filled with life, comfort, and joy.” — Anita Bakke, LMT, CDT
Anita Bakke will speak on the importance of lymphatic function and what it means to be a CLT from her decades long experience in healthcare and helping others.
In the late 1980’s, my mother-in-law, Patsy, had a double mastectomy. Seven years later, she pricked one of her arms trimming bushes in her yard. At the time it seemed like a harmless scratch. Within days her arm engulfed with edema from her hand up to the shoulder. She went to the hospital where they tested her and never said the word Lymphedema to her or determined any issues. Within a month, the edema went across her breast area to the other arm. I took her to 3 physicians, the diagnosis she got from each was “Pat, you are getting old.” She was an otherwise healthy 70! Within 9-months, cancer had invaded every part of her body and she passed. In her last months, I knew reflexology and would use my knowledge of it to ease her discomfort. It was during those sessions she encouraged me to become a massage therapist and learn what it was that caused her to swell up. After her passing, I set to it.
Midway through my massage education, my sister, Jo, became ill with brain cancer. After months of medical treatments and surgery she was given a prognosis of 12 months, Jo came to live with me so I could care for her. The moment she arrived we set out a specific care protocol to help her increase stability, enjoy her life, and increase her time. Through this care protocol which included regular oncology massage, manual lymph drainage (MLD) therapy, Reflexology (which is now known as my signature therapy), exercise, and a healthier diet, my sister lived another eight amazingly wonderful years surrounded by the things she loved – animals. specially horses, music concerts, travel, friends and family.
Read more about Anita and her clinic at http://fluidfactor.net/
JOBST® Compression Institute Monthly Educational Webinar Collaboration
Thursday, April 4, 2019
Join the JOBST® Compression Institute for their monthly educational webinar in April. Dr. Nicole Stout, DPT, CLT-LANA, FAPTA, will be featured as a guest speaker. She has authored and co-authored over 50 peer-review publications, several book chapters and is the co-author of the book 100 Questions and Answers about Lymphedema.
“Dr. Nicole Stout, DPT, CLT-LANA, FAPTA is a renowned health care researcher, consultant, educator, and advocate. As an executive consultant, she advises clients in implementing innovative health care research findings into clinical practice and enabling greater use of mobile health and wearable technology to improve patient and clinical outcomes.
Dr. Stout is an internationally recognized expert and leader in cancer rehabilitation. She has lead national consensus and guideline initiatives through the American Cancer Society, the National Institutes of Health, and the American Congress of Rehabilitation Medicine. She holds several adjunct faculty appointments and is a member of the American College of Sports Medicine’s Presidential Taskforce on Exercise Oncology, the American Lymphedema Framework steering committee, and is a past board member of the American Physical Therapy Association. She has extensive background in research dissemination as a subject matter expert to health care leaders in the US federal government, private industry, and abroad.
She has authored and co-authored over 50 peer-review publications, several book chapters and is the co-author of the book 100 Questions and Answers about Lymphedema. Her research publications have been foundational in developing the Prospective Surveillance Model for cancer rehabilitation. She serves as a medical expert for several media outlets and is media spokesperson for the American Physical Therapy Association.”
Lymphedema Podcast FB Live
Tuesday, March 12, 2019 at 7 PM – 8 PM
-Is a Certified Lymphedema Therapist in Texarkana, Texas. She works in a hospital based outpatient clinic as a Physical Therapist Assistant. Since becoming a CLT in 2016 Betty has become passionate about educating others on Lymphedema.
-In her local community, she has organized a support group open to both patients and their families. Caregivers, friends and family members of those diagnosed with Lymphedema have questions too, and educating them is just as important. On the State and National level Betty is a member of the Texas Team advocating for the Lymphedema Treatment Act in Washington DC annually.
-In addition to educating others on Lymphedema, Betty loves to attend seminars, symposiums, and training courses to increase her knowledge of Lymphedema. (Tune in for special Podcast episodes covering her most recent courses.) While listening to a podcast Betty was encouraged to create this podcast to better inform and educate others on Lymphedema.
Watch Party in Honor of Kathy Bates before US Congress
Tuesday, April 9, 2019 at 2:45 PM – 3 PM
Academy Award Winner and LE&RN spokesperson, Kathy Bates, is in DC lobbying for LE and will be speaking in front of the US House Committee on Appropriations Subcommittee on Labor, Health & Human Services, and Education on Tuesday APR 09 @ 2:50 PM ET.
I will host a Facebook Watch Party in her honor Via YouTube Live Stream on Public Witness Day to support her and our community in the fight against lymphatic disease.
Live-stream can be found here: https://youtu.be/KGRHg-840KE
Coming Soon May 4, 2019 – Lft. Luis López Montoya
It is my absolute pleasure to announce that Lft. Luis López Montoya, author of El linfedema explicado, will be our next featured speaker via prerecorded video on Saturday May 4, 2019. Mr. Montoya created this video exclusively for the Official Lymphie Strong Inspiration Group.
Es un placer para mí anunciar que Lft. Luis López Montoya, autor de El linfedema explicado, será nuestro próximo orador destacado a través de un video pregrabado el sábado 4 de mayo de 2019. El Sr. Montoya creó este video exclusivamente para el Grupo de Inspiración Oficial de Lymphie Strong.